http://www.a-lou.com/enbloglou/index.php/ fr-fr 2004-10-22T19:33:19+00:00 http://www.a-lou.com/enbloglou/index.php/2004/10/22/21-1WhatIsABlog 2004-10-22T19:33:19+00:00 Luc Boland Read me "Lou's diary" and "Letters to Lou" are "blogs", that is to say Internet Diaries with one important feature : this kind of website ("blog") is read from bottom to top. It's just like your old newspapers piling up in the basement : from the most recent on top, to the oldest at ... http://www.a-lou.com/enbloglou/index.php/2004/10/22/20-8MailingListSupportingUs 2004-10-22T19:31:23+00:00 Luc Boland Read me By signing up to the mailing list you allow us to measure the public's interest in Lou's website. (See Right Column)This way you will be informed of site updates, which do not happen on a regular basis.(inversely a simple email with the title "unsubscribe" is all you need to be ... http://www.a-lou.com/enbloglou/index.php/2004/10/22/19-7ByWhatRight 2004-10-22T19:30:49+00:00 Luc Boland Read me (By Lou's daddy.)A series of questions the nature of this website may raise :Do I have the right to present thoughts as if they were my son's, when he's never expressed them orally ? I think so, seeing as how his behavior speaks for himself, and after five years I've ... http://www.a-lou.com/enbloglou/index.php/2004/10/22/18-6Copyright 2004-10-22T19:30:32+00:00 Luc Boland Read me ... As a reminder, all texts and all pictures are the intellectual property of their author(Luc Boland). No exploitation (commercial or non-commercial), whether it be of the pictures or of the story, can be made without the written consent of the copyright holders. Thank you. ... http://www.a-lou.com/enbloglou/index.php/2004/10/22/17-5WhyThisWebsite 2004-10-22T19:30:19+00:00 Luc Boland Read me Following a number of (positive) questions about the reason for this website's existence, I will answer you in three points :1. First of all because everybody carries his own suffering, his own wounds, and it feels good to share them, and to see the "good in them". Lou is such ... http://www.a-lou.com/enbloglou/index.php/2004/10/22/16-4TheHandicapWhatHaveIGot 2004-10-22T19:30:06+00:00 Luc Boland Read me It didn't take us longer than three weeks after you were born to figure out something was wrong. It would take three months for us to finally get the result of yet another test, a magnetic resonance. "Your son is suffering from Septo Optical Dysplasia. It is a very rare congenital ... http://www.a-lou.com/enbloglou/index.php/2004/10/22/15-3ThisOnlyHappensToOthers 2004-10-22T19:29:50+00:00 Luc Boland Read me One child out of ten million... I was therefore the only "representative of my species" known in Belgium in 1998. Two hundred and thirty five cases are born every year in the United States.That's how rare my disease is... They call it an orphan disease. But I'm no orphan ! ... http://www.a-lou.com/enbloglou/index.php/2004/10/18/14-2Introduction 2004-10-18T23:15:10+00:00 Luc Boland Read me Hello, my name is Lou. I am 9 years old (5 years when this story begun). I am blind from birth, and profoundly different in my head... My daddy decided to create this website to share with you the slightly crazy experience of my discovery of life.Lou ...